The Adrienne
Coles
Memorial Trust
PDKIDS, for kids living with parents who have Parkinson's
PDKIDS is a mailing list for Kids who love someone with Parkinson's Disease.It was established as a forum for kids affected by PD to have a place to share with each other. Kids may discuss anything they wish in confidence (to the extent that an Internet list will allow).
If you are interested in Parkinson's Disease but aren't a "Kid", then there are a number of general mailing lists for Parkinson's Disease.
Using the List
Joining PDKIDS
To join PDKIDS, send an email to join-pdkids@lyris.coles.org.uk
Sending email to PDKIDS
Once you have joined PDKIDS you can send an email to the list at the address pdkids@lyris.coles.org.uk.
Using the list server web pages
Once you have joined PDKIDS, if you want to check the list archive or change your subscription options, you can do so from the Lyris web interface at http://lists.nipltd.com/cgi-bin/lyris.pl?enter=pdkids.
Contacting the list owners
To contact the list owners, send an email to owner-pdkids@lyris.coles.org.uk.
About the list
Ownership
PDKIDS is a joint project between the American Parkinson's Disease Association's Young PD Information & Referral Center and the Adrienne Coles Memorial Trust.
PDKIDS is hosted as a public service by New Information Paradigms.
To contact the list owners, send an email to owner-pdkids@lyris.coles.org.uk.
Acceptable Subjects
Anything related to living in a family with Parkinson's Disease.
Other sources of advice
If you want advice about specific PD treatment issues, talk to a doctor.
To get more information about PD or areas of concern regarding PD, contact American Parkinson's Disease Association's Young PD Information & Referral Center
General Parkinson's information, and pointers to other sites can also be found at http://james.parkinsons.org.uk/
Disclaimer
The APDA, ACMT, or NIP cannot accept responsibility for what is said on the list. The list is provided as an opportunity for children to share concerns, information and support regarding living in a family where Parkinson's Disease is present.
Privacy
Subscriber names and personal email addresses will be automatically deleted from email headers posted to the list to ensure
confidentiality.
The "Adult Presence" on the list will be light, serving only to provide technical guidance and to ensure the conversation remains constructive. Initially, the "adults" are Simon Coles (a PD Kid himself) and Susan Reese, Director of the APDA Young Information & Referral Center (which specializes in the needs of the younger PD community and their family members).
The list archive is private to list members. If you are not on the list you will not be able to see it.
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The Adrienne Coles Memorial Trust is a Registered Charity with Charity Commission for England & Wales, registration number 1084973.
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